We appreciate our sponsors for making this event possible and for valuing the collaboration of multiple stakeholders in supporting expectant parents following a prenatal diagnosis/screening results.
Primary Event Funder
Joseph P. Kennedy, Jr. Foundation
We are profoundly grateful to the Joseph P. Kennedy, Jr. Foundation as the primary funder of this event and as an ongoing funder for our work. The Foundation has made possible the development and dissemination of all our resources through the visionary leadership of Eunice Kennedy Shriver. We are profoundly grateful for their support and dedication to this issue.
We also greatly appreciate our other sponsors for their generous support in making this event a success:
Strategic Partner Sponsors
The National Parents First Call Center, a program of the Massachusetts Down syndrome Congress, and the Down Syndrome Diagnosis Network are strategic partners who provided financial support for this event at the Diamond level and above and who also provide ongoing collaborative support for new and expectant parents. We are so grateful for their valuable work and support.
National Parents First Call Center, a program of the Massachusetts Down syndrome Congress
“The National Parents First Call Center is a first-of-its-kind, comprehensive full-service professional center that serves expectant parents and medical providers as well as Down syndrome organization leaders and parent volunteers. The center includes two branches — the National Prenatal First Call Center and the First Call National Training Center.”
Down Syndrome Diagnosis Network
“DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents – and the medical professionals who serve them – from the time of diagnosis through age 3, while fostering the opportunity for life long connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time, and that families can quickly find meaningful connections.”
Diamond Level Sponsors
National Down Syndrome Society
“The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.”
Trisomy 18 Foundation
“We envision a future where Trisomy 18 is a preventable and treatable condition and all parents have access to compassionate, knowledgeable care that respects the humanity and potential of their child diagnosed with Trisomy 18.”
Platinum Level Sponsors
Sunflower Neonatology Associates
“Sunflower Neonatology Associates was founded in 2004 by Dr. Kathleen Weatherstone, MD, to provide family-centered, evidence-based medical care for very ill and premature infants.”
Silver Level Sponsor
CaseWestern Reserve University Department of Bioethics
CaseWestern Department of Bioethics mission:
- Provide excellent education in bioethics and medical humanities to students and professionals in the School of Medicine and throughout the University;
- Contribute outstanding research and scholarship to the world literature in bioethics and medical humanities;
- Provide local, regional, and national service to health professionals, policy makers, and the public;
- Promote international bioethical dialogue through research collaborations, training programs, and institutional partnerships
Bronze Level Sponsor
Genetic Support Foundation
The mission of the Genetic Support Foundation is “to improve the quality of healthcare by providing up-to-date, objective genetic information to patients, providers, and healthcare organizations, supporting those in need of genetic services, and facilitating the adoption of best genetic practices.”
Many thanks to Kennedy Krieger Institute for donating the location for this event.
“The world’s premier institution dedicated to improving the lives of children and young adults with care and research focused on pediatric developmental disabilities and disorders of the brain, spinal cord and musculoskeletal system.”
Many thanks to The Center for Dignity in Healthcare for People with Disabilities for contributing speakers, planning, and logistics.
“The Center for Dignity in Healthcare for People with Disabilities is an interdisciplinary coalition of stakeholders, including medical providers, researchers, ethicists, individuals with disabilities, and their family members. The Center’s goal is to identify and reduce life-limiting healthcare inequities faced by people with intellectual and developmental (ID/DD) disabilities. Healthcare inequities are preventable aspects of care that cause people to have worse health outcomes. Ableism contributes to these healthcare inequities.”