Two men with Down syndrome looking at a phone.

About The Prenatal Disability Education Summit

The Prenatal Disability Education Summit is an event sponsored by the Joseph P. Kennedy, Jr. Foundation that will be held from 8am-4:30pm on May 13, 2022 at Kennedy Krieger Institute at the Johns Hopkins Medical Campus in Baltimore Maryland and will also include a welcome reception on Thursday, May 12 from 7-9pm. This event will host about 60 invited stakeholders, representing the medical, advocacy, and public policy communities, to discuss the future of prenatal education about disabilities. The overall objectives of the Prenatal Summit will be to do the following:

  • Assess the current state of education about disabilities for expectant parents receiving a prenatal diagnosis.
  • Review collaborative accomplishments since the last Down Syndrome Consensus Meeting in 2008.
  • Establish collaborative goals in the areas of public policy, organizational policies/guidelines, research, and ethical practices for the next decade to ensure that families receive accurate, up-todate, and balanced information, resources, healthcare, and support they need following a diagnosis or screening results and to help families and clinicians better understand a more up-to-date vision of people living with disabilities.
  • Discuss best practices for building relationships between the advocacy and medical communities. Additional discussions about strategies for the education and training of medical and genetics professionals to better understand current life outcomes for people with disabilities.
  • Directory of stakeholders who want to continue to work collaboratively on disability education in the prenatal setting

While it is our hope that this event will take place in person as promoted, the safety of everyone attending is our top concern. The format of the event will be determined based on the host’s COVID-19 precautions as the event date draws closer. Please check for updates on this site and we will email all registrants to confirm the final format of the conference.
—Kennedy Krieger Institute